I’m sure many of you will understand when I say that I’ve spent 10’s of thousands of dollars and decades of my life trying to figure out how to get over Lyme Disease. This is a common refrain among Lyme sufferers and my journey has been no exception.
30 Year Journey
I will spare you the gory details by summarizing it as a 30 year journey, most of which was undiagnosed. Since being diagnosed, it’s been a similar nightmare of wrong turns, dead ends, and expensive opinions. Of the literally hundreds of things that I’ve tried, including over a year of antibiotics, these are the things that worked the best for me. This list is curated from life experience alone. Take what you will, leave the rest, try new things, and don’t lose hope.
As you will see from my list below, there’s not a magic bullet in curing Lyme disease. Well, ok, the number 1 on this list comes very very close to a magic bullet, but everything else on the list helped support my process towards wellness. AND, I’m in a long slow recovery of my vitality after so many years of illness.
Also, not everyone will resonate with these choices or have the same results. Healing is a super personal process. I’m sharing these things in hopes that it will be a helpful starting point for further exploration into your own healing journey.
It’s very likely that you’re tired of advice. From all directions. Especially from people who haven’t had Lyme. And I’m gonna offer it anyway. Because in it there is some hope. After this whole ordeal, my three biggest pieces of advice are
- Try experimental things,
- Listen to your intuition,
- Stay away from spending gobs of money on mainstream medical solutions.
New Paradigm of Healing
I truly believe the answers lie in the new paradigm of healing which is outside the box of our normal way of thinking and seeing. I also truly believe that the allopathic medical model, aka corporate medicine, holds profit as the main form of motivation and ultimately does not have our best interest at heart. That being said, their systems are not all bad and it’s always important to try things if you’re curious. At the very least to cross it off the list.
Top 10 List
My 10 ten treatments in the curing of Lyme disease are listed here in reverse order:
Limbic System Repair
Do yourself a giant favor and get hip to this concept—that our limbic system (emotional brain) plays a role in keeping us sick because it is overreacting to generally benign things that normal people can deal with. Take the smell of perfume that most folks can handle: because of long-time illness, our sensitivities imprint on our nervous system as extreme danger. And we’re often in fight or flight over seemingly minor things. That threat response continues to deepen over time leaving us worse and worse. It’s not our fault because our emotional brain is trying to take care of us. But we need to interrupt this process and encode a different message – that all is well, we are healthy and strong, and wellness is a birthright. There are three resources I’ll share here. Take your pick based on what you’re drawn to.
- Annie Hopper has pioneered the Dynamic Neural Retraining System and lots of folks have gotten massive relief. I have done the program and incorporated some components but haven’t been vigilant enough with it to have it become higher on the list. I have heard other Lyme sufferers rave about it. Details here: https://retrainingthebrain.com/
- Dr. Joe Dispenza is remaking the face of personal wellbeing. Still in the process of digesting all his stuff. Check it out here: https://drjoedispenza.com/
- Norman Doidge has some incredible books out there about how the brain works in healing. I read this one and it was really profound: The Brain’s Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity
In my early days of seeking healing, at age 18 or so, long before I knew I had Lyme disease, I was introduced to the idea of energetic medicine. Since that time I have seen probably a half a dozen classic homeopaths who tried to treat my chronic conditions with constitutional remedies. While I always experienced good results with acute remedies (oscillococcinum for cold/flu symptoms for example), none of the constitutional remedies ever worked. I had a very different experience recently however when a holistic healer, homeopath, and flower essence practitioner named Joseph Aldo treated me. I think it was a combination of the right timing, the experience of the practitioner, and my willingness to have my life changed. In this context I felt the energetic medicine really supported my journey away from seeing myself as an ill person to seeing myself as a well person. Find someone you love and trust and if the timing is right, it may open portals for you.
If I still had an active Lyme infection, I would try this treatment more diligently and I’m guessing it might have as profound an effect as the #1 cure on this list. That being said, my doctor warned me off this early on in my treatment claiming that it is harsh (as opposed to the 15 antibiotics that I was taking at one time????). The few times I took higher doses of this treatment, it immediately took away the “infectious surge” feeling that I came to know as a Lyme flare. I would find someone who knows this product well and trusts it and follow a high intake protocol. I have a friend who cured Lyme through intravenous silver and swears by it. Do some research. Make sure to get a very high quality version of this otherwise you might turn blue. I ONLY use this product and while it’s expensive, I trust it: https://www.argentyn23.com/. One suggestion is to keep it in a spray bottle and take it with you wherever you go.
Because of my heavy use of antibiotics, long-time chronic illness, years of birth control pills, and other factors, I believe I have a good amount of Candida in my system. I say more about this in #1. I’m in the process of trying this and feel really excited about this so I jumped the gun and put it on the list. I will update as I go. This is where to get the information: https://vitalitycapsules.com/. This is the Candida Cleanse document by Dr. Jennifer Daniels and if you put your name in on that page, she’ll send you the .pdf. You can also join a Facebook group on Turpentine here.
I’ve been using iodine regularly since 2016 and it has made a big improvement in my health. I changed my diet around the same time (see #2) but I have an intuitive sense that the iodine has contributed a bunch to my higher immune system functioning. Before 2016 I was so run down that I would get a sore throat all the time and always get the bugs and colds that were going around. I understand now that we can be depleted in this important mineral. I read this book by Dr. David Brownstein, Iodine: Why You Need It, Why You Can’t Live Without It, and also got support from this Facebook groups: https://www.facebook.com/groups/iodine4health/. I personally paint it on my skin instead of taking it internally because one less thing to take internally is better for my system. And I don’t follow all their protocols to the letter. For example I don’t take Vitamin C but I do take Selenium. It still seems to work well for me.
Adding significantly more magnesium to my life has been a breakthrough in my health journey. Apparently we’re all deficient and even more so due to chronic illness. I had read several books which I won’t list here as some of them advocate a proprietary brand of the mineral, but I will say that Magnesium Chloride is the type of magnesium that I take because it has the least impact on loose bowels. In the past when I’ve taken oxide or citrate, I always got diarrhea, which exacerbated my already challenging digestive condition. With the chloride, I can keep increasing the amount and my body is adjusting. In addition to the multitude of health benefits, my goal is to poop every single day and while I’m not there yet, I’m getting closer. There is something else I tried over the past few years called bowel retraining, which instructs us to tone up our ability to be responsive to pooping. It’s probably helpful but I have enjoyed the nearly effortless process of magnesium moving my body more towards regularly.
I drink water with added minerals every day. In one half gallon of water I use 1 tsp of sea salt, 1 tsp of potassium citrate, and 2 tsp of magnesium chloride. This is a very affordable way to get minerals into my daily life. I also have been adding this liquid ionic magnesium as well to increase the chances of absorption. This is the brand that I use although I’ve had a really hard time finding evidence as to what ionic actually means and if it’s more effective. I also use magnesium on my skin and this is the brand I use, although this by itself is not enough: https://www.ancient-minerals.com/product/magnesium-oil/. I truly believe I will be filling the well with magnesium for years to come.
Low Dose Naltrexone or LDN
Some genius person in the form of Dr. Ian Zagon discovered a crazy positive outcome of using Naltrexone at super low doses. Naltrexone blocks opioid receptors and therefore drug addicts take it to block the effects of heroine and other drugs. In very low doses, LDN blocks the opioid receptors briefly, allowing the body to realize that it needs to make more, and it does so, endogenously. For those of us suffering from unknown, uncurable, and difficult to treat illness, it has profound impact. For some people it has drastically improved their conditions and their lives. For me, it enhanced, stabilized, and made predictable my sleep, sometimes allowing upwards of 8-10 hours per night. This allowed my body deeper healing than I was able to get with Lyme induced insomnia. Please look it up online and join some groups. It’s been the biggest breakthrough for “auto-immune” illness in decades.
On top of all that, it’s super affordable. I have my doctor prescribe the 50mg tablets and I dilute it in 50mg of distilled water and then keep it in a jar in the fridge. I use a liquid syringe (free at most drug stores from the phama department) and take it at night before bed. The last two years of treatment cost me approximately $27. Look it up online and/or consult someone who knows a bunch about it.
This might be the most radical thing on this list and some folks won’t dare try it. The fortunate thing however is that it’s completely free and will likely help you feel fabulous. It helps tremendously that my body is in deep and sustained ketosis (see #2). Not eating regularly is a natural outgrowth of that metabolic state and so fasting becomes super easy to maintain. I intermittent fast generally speaking 12-20 hours per day with no effort, no cravings, and no hunger. Sometimes I fast for a day or more at a time. Not only does this practice aid in weight maintenance, it makes my brain sharp as a tack, reduces the hassle of eating three meals a day, and improves all my health conditions. In fact, I feel great with this practice. There’s a ton of science out there about the ins and outs of this practice and other folks explain it much better than I can. All I know is that it is foundational to me maintaining wellness.
Dry fasting is the advanced form of fasting and I practice this as well. This is where I got all my information on dry fasting on a carnivore diet: https://zerocarbzen.com/dry-fasting/. My longest dry fast was four days but since I lost all my extra fat through fasting I no longer do sustained fasts. The intermittent fasting works well for me these days.
This is only #2 because it didn’t actually get rid of the infection and this post is all about the actual infection. Short of that, this has been the biggest and best change of my adult life. I went from being barely functional to highly functional and I attribute that to this one change. Likely due to the Lyme disease, I struggled with severe digestive distress my entire adult life including disordered eating, IBS (chronic constipation as well as chronic diarrhea), pain upon eating, pain at every stage of the digestive process, and severe food allergies. I have been, for long periods of time, a practitioner of the Primal Diet, Nourishing Traditions diet, and FODMAP diet. All of them helped to some degree but the sea change began when I went full-on carnivore. There are a ton of resources out there including an apparently great book called the Carnivore Code, which I have not read. I got all my information from this website https://zerocarbzen.com/ and I am eternally grateful to Esmee and all the other folks who contributed to this project. There are many ways to explore this process and the suggestion is to just start by eating fatty meat whenever hungry and try it for 30 days.
I’ve been a dedicated carnivore since September 2016 and I haven’t looked back once. I eat only 100% grassfed beef and I source my meat from sustainable farms near me. I would happily put my diet up to the ecological footprint test against any vegetarian or vegan and feel strongly that mine would come out ahead on the sustainability challenge. These days I eat once a day (sometimes twice) and have started adding much more fat in the form of suet/tallow. I sustain a state of ketosis all the time and haven’t had cravings of any kind in years.
I believe our culture is carb addicted and that this leads to many disorders such as the top killers in the US: diabetes, heart disease, stroke, and cancer. In addition I believe that carbs make all chronic illness worse because the body is working extra hard to deal with less than nourishing calories. If you are, like I was, concerned about letting go of vegetables please do some research on the Acid/Alkaline Myth. It’s completely possible to sustain a wonderful body without vegetables. And some of us have learned that they can actual impede deep healing.
This product is controversial. So much so that the folks who sell it had to incorporate as churches in order to sell this as a sacrament of the faith. Literally, it would have been taken off the market entirely if these brave folks didn’t make efforts to protect it. For some Lyme sufferers, it takes running out of all their money, all their options, and all their hope to try something like this. I’m here to say, DON’T WAIT THAT LONG.
Part of the reason that it’s controversial may be because it’s effective, affordable, and safe. Call me crazy, but some entities would be very happy if we all kept spending 10’s of thousands of dollars of solutions that don’t cure. I have listed a bunch of overview links below and I outline my specific protocol here. Also, I have added my testimonial to this long list. This is where I buy it though I have no special loyalties. These days you have to buy a membership because harassment. Here are a bunch of resources to get you started on your journey. Invest the time because it just may save your life.
Equally inspiring is Kerri Rivera who has been curing kids of autism with MMS and completely banned from youtube: https://cdautism.org/videos.
This won’t apply to all people for those women in mid-life, Lyme disease has likely sucked your life-force and vitality dry. In addition, the lowering of progesterone and estrogen in midlife are likely adding to the challenge by reducing detoxification and circulation, increasing pain reactions, and just generally making life harder. My life really did change when i went on small amounts of bio identical hormones. My energy came up, my sex drive came back, and it’s helped me to feel like my old self again. Ask your nurse practitioner about this. I love NP’s for so many reasons but in large part because they tend to women who are pro-women.
Rest & Renewal
It’s true that our culture pushes us to perform. And it’s also true that it’s getting harder and harder to survive and thrive in our globocap world. And if we’ve been trying to hold down a job or raise a family in the midst of a Lyme infection, we are exponentially burning the candle at both ends. Resting after the infection is gone is just as crucial as resting while we have the infection. The body needs to recalibrate and integrate. Resting really is a crucial form of healing from chronic illness.
Years ago I found that this product helped me detox more easily. At first I was using a product with glycerin in it and I could no longer tolerate it. After years of searching I finally found a product with no glycerin or sweetener at all. I believe it helps my body function better. This is the product that I use. I am careful however to not use high levels of anti-oxidants when I’m doing oxidative therapy like ozone or MMS. Seems like they may cancel each other out?
One last thing I’ll say is this: I am not interested in any kind of debate about the merits or the dangers of any of these treatments. This is a personal essay about what worked for me that I’m happy to offer as a service to the Lyme community. If you’d like to have a private consultation with me about any aspect of this I’m more than willing. Please message me from the right side-bar of my website. If you’re offended or disagree, feel free to move along. Or better yet, write your own article about what worked/works for you. Because we need all the beautiful intelligence about how to cure Lyme disease as we can get.
Other Lyme Related Articles
Please see the following articles also related to Lyme disease: